Thursday, March 25, 2010

Update time~

So I realized it has been awhile since my last post, I'll fill you in on what's been happening. 

Vanuatu was great however a little sad.  I am so used to being active on holidays it was hard for me not to be able to go hiking, snorkeling, cliff jumping ect.  I'm still working on catching my brain up on whats happening with my body.  Mike and I still enjoyed ourselves it was just different.

After Vanuatu we came home for a few days before heading to Sydney to pick up Liz who flew in from NY for a week.  We had a blast with her here, lots of laughs.  It makes such a difference to have a 3rd person to help out.  It was nice for Mike to have a few breaks.

So what's the plan?  Well unfortunately I am still progressing.  I have trouble typing so Mike usually scribes for me however at the moment he is sound asleep.  My walking is worse, I got my first wheelchair last week, it's red my favorite color, we only use it for big outings.  I'm trying to walk for as long as possible.  My speech is becoming a little slurry mostly when I'm tired.  All in all my body is falling apart however I'm doing pretty good staying sane. 

The up side of MND is my mom is coming out in a couple weeks!  I can't wait.  At the moment Mike and I are looking for a new place to rent, the place we are in now has too many stairs.  We also have both decided  to no longer work.  We are not sure how much time we have left so we want to spend it together.

We have made the decision to stay in Australia indefinitely however, we will head back to Montana for a few months in May.  Not looking forward to the trip over but I reckon being with my family for awhile will be worth it.

Emotionally we are doing OK.  What Mike and I are going through is crazy something we never even thought to worry about, something most people don't have to deal with until they are old and gray.  I'd be lying if I said everyday isn't a constant struggle.  But what I've learned is we can withstand more then we ever thought possible.  I'm so blessed to have a husband that is my other half, who showers me with unconditional love in situations that would send others running.  I've come to the end of my rope countless times in the last few months but thank God I had Mike there to tie little knots and tell me to hang on.

Wednesday, March 10, 2010

Food for thought~

"I might have had a tough break, but I have an awful lot to live for."

Lou Gehrig