If I were a meat pie you would be my crust.
You're the flip to my flop, the ying to my yang.
You are my favorite part.
Some people look a lifetime for what we have. I love you more today then yesterday.
Sunday, June 27, 2010
Mind Meld~
If I were french fries you would be ketchup.
If I were a meat pie you would be my crust.
You're the flip to my flop, the ying to my yang.
You are my favorite part.
Some people look a lifetime for what we have. I love you more today then yesterday.
If I were a meat pie you would be my crust.
You're the flip to my flop, the ying to my yang.
You are my favorite part.
Some people look a lifetime for what we have. I love you more today then yesterday.
Friday, June 25, 2010
WTF - What The Fong.
That's What The 'Dr.' Fong for all of you who aren't in Reno with us.
This afternoon Debi was on a roll talking about when Stacy's cure from MND sets the neurological world on fire and she goes on to write a book about her experiences and then this book gets picked up by Hollywood and made into a feature film. Just quietly I think Debi liked Julia Roberts as a candidate to play her.
Stacy and I carried this on and were talking about who would play all the parts in the movie of her fight with Motor Neuron Disease - Gambling in Reno, a high stakes medical adventure. The highlight of this is when we decided that the guy who plays the Asian gang boss type guy in 'The Hangover' would be best suited to play the head doctor here at the Medical Centre, Dr. Bruce Fong DO, HMD. WTF
What the Fong?!
I'm proud of us for still having a great time and laughing about something everyday. We have had some hard days over the last year and a half, this week included however I don't think there has been a full day in which Stacy and I haven't been able to laugh together. Plenty of half days like that but maybe not any full days. We are blessed by that.
Righto so here is what is going on. Stacy's blood test for Lyme disease came back last week and it was positive. This means that there is a bacteria infecting Stacy's cells that is very hard to kill and causes lots of problems. Many people at this clinic have Lyme disease. This clinic seems to have worked out a way to kill Lyme disease, we think they will do that for Stacy. This could be extremely good.
Other things that have been identified are that she has some heavy metals in her body and a range of food and environmental allergies. The clinic also has a long history of successfully dealing with these issues.
Her treatment at the moment continues to involve daily detox IVs at the clinic, plenty of oral supplements, a battery of subcutaneous and inter-muscular medicine injections delivered both at the clinic and by Dr. Neild at home. She is also continuing with 'the push' which is the nightly injection of medicine that induces some kind of major immune system reaction characterised by shivers and shakes, muscle tightness and intense ache and a fever. She also intermittently during the week does some massage, some lymphatic drainage therapy and some liver cleanse theory.
There is a new therapy on the horizon which they call neural therapy. This involves a series of acupuncture style (along meridian lines) injections of medicine into her lower back and legs. This is designed to open up the energy pathways for her legs and improve the ability of her nerves to synapse. It will involved around 100 subcutaneous injections during the session.
The treatment continues to be hard work physically, emotionally and mentally. I've been working harder this week at being excited about the therapy rather than being skeptical of the therapy, its been good.
The theory that we are working with is that by dealing with all the imbalances that are present in Stacy's body - dissfuctional liver, hyperactive allergic reactions, confused immune system, heavy metals and Lyme disease - she will be in a good state of general health. Once all these blocks to healthy function are removed then her body will be given its best chance to holt or reverse the degeneration that she has experienced over the last 16 months.
Currently we haven't seen any signs of that reverse yet. We do believe that this clinic will be able to successfully deal with everything they have found. The Fonger hopes to see some clinical (functional) change before we leave in the next couple of weeks. We think that we are in the right place for this to happen.
Tawnya has gone home to Great Falls. Shannon one of Stacy's college room mates, bridesmaids and general sister from another mister has come and gone. The presence of these intimate friends has been excellent. Thanks girls, nice work.
Sorry that you have to put up with me writing instead of Stacy. She is still firing along with wonderful moments of Stacyness (caring for and encouraging the other patients at the clinic, achieving and verbalising moments of uplifting perspective, humorously negotiating and disarming the potentially embarrassing, uncomfortable and disheartening aspects of her daily life and making the people around her feel as though they are uniquely special and worthwhile) she just doesn't have the emotional energy available to write them up on this blog.
Lots of love to you all. Keep it coming right back over.
Mike and Stacy
This afternoon Debi was on a roll talking about when Stacy's cure from MND sets the neurological world on fire and she goes on to write a book about her experiences and then this book gets picked up by Hollywood and made into a feature film. Just quietly I think Debi liked Julia Roberts as a candidate to play her.
Stacy and I carried this on and were talking about who would play all the parts in the movie of her fight with Motor Neuron Disease - Gambling in Reno, a high stakes medical adventure. The highlight of this is when we decided that the guy who plays the Asian gang boss type guy in 'The Hangover' would be best suited to play the head doctor here at the Medical Centre, Dr. Bruce Fong DO, HMD. WTF
What the Fong?!
I'm proud of us for still having a great time and laughing about something everyday. We have had some hard days over the last year and a half, this week included however I don't think there has been a full day in which Stacy and I haven't been able to laugh together. Plenty of half days like that but maybe not any full days. We are blessed by that.
Righto so here is what is going on. Stacy's blood test for Lyme disease came back last week and it was positive. This means that there is a bacteria infecting Stacy's cells that is very hard to kill and causes lots of problems. Many people at this clinic have Lyme disease. This clinic seems to have worked out a way to kill Lyme disease, we think they will do that for Stacy. This could be extremely good.
Other things that have been identified are that she has some heavy metals in her body and a range of food and environmental allergies. The clinic also has a long history of successfully dealing with these issues.
Her treatment at the moment continues to involve daily detox IVs at the clinic, plenty of oral supplements, a battery of subcutaneous and inter-muscular medicine injections delivered both at the clinic and by Dr. Neild at home. She is also continuing with 'the push' which is the nightly injection of medicine that induces some kind of major immune system reaction characterised by shivers and shakes, muscle tightness and intense ache and a fever. She also intermittently during the week does some massage, some lymphatic drainage therapy and some liver cleanse theory.
There is a new therapy on the horizon which they call neural therapy. This involves a series of acupuncture style (along meridian lines) injections of medicine into her lower back and legs. This is designed to open up the energy pathways for her legs and improve the ability of her nerves to synapse. It will involved around 100 subcutaneous injections during the session.
The treatment continues to be hard work physically, emotionally and mentally. I've been working harder this week at being excited about the therapy rather than being skeptical of the therapy, its been good.
The theory that we are working with is that by dealing with all the imbalances that are present in Stacy's body - dissfuctional liver, hyperactive allergic reactions, confused immune system, heavy metals and Lyme disease - she will be in a good state of general health. Once all these blocks to healthy function are removed then her body will be given its best chance to holt or reverse the degeneration that she has experienced over the last 16 months.
Currently we haven't seen any signs of that reverse yet. We do believe that this clinic will be able to successfully deal with everything they have found. The Fonger hopes to see some clinical (functional) change before we leave in the next couple of weeks. We think that we are in the right place for this to happen.
Tawnya has gone home to Great Falls. Shannon one of Stacy's college room mates, bridesmaids and general sister from another mister has come and gone. The presence of these intimate friends has been excellent. Thanks girls, nice work.
Sorry that you have to put up with me writing instead of Stacy. She is still firing along with wonderful moments of Stacyness (caring for and encouraging the other patients at the clinic, achieving and verbalising moments of uplifting perspective, humorously negotiating and disarming the potentially embarrassing, uncomfortable and disheartening aspects of her daily life and making the people around her feel as though they are uniquely special and worthwhile) she just doesn't have the emotional energy available to write them up on this blog.
Lots of love to you all. Keep it coming right back over.
Mike and Stacy
Monday, June 14, 2010
Time for an update
G'day folks.
Its Sunday evening after 2 and a half weeks here in Reno. It has been a pretty nice weekend. Unlike last Saturday this week Stacy woke up feeling pretty good and refreshed. We have had a couple of nice relaxing days enjoying the excellent weather, eating out and resting up. Stacy has punched a 2 top quality afternoon naps, we think they are pretty important for her to catch up on the week of treatment action.
At noon today the T Ray, Junior Klein, the sweetest young lady ever to come out of Great Falls high Tawnya Gilchrist arrived in town. Tawnya is Stacy's great mate from back in the school days as is going to stay with us for a week and help ease the experience for us all.
We are excited to have Tawnya in town for the next week.
Last week was a tiring week. We ramped up the treatment intensity which was hard on Stacy's body due to the induced fever reaction that she experienced nightly. We are still waiting for some test results to come back however we are getting into the rhythm of the treatment and expect a similar week this week. We still feel like there is value in the treatment and are hopeful that after we have survived our time here that Stacy's body will be able to do some healing on its own free from toxins, pathogens and whatever else is disrupting her cells.
Thanks for all the love and care that has been sent our way.
Its Sunday evening after 2 and a half weeks here in Reno. It has been a pretty nice weekend. Unlike last Saturday this week Stacy woke up feeling pretty good and refreshed. We have had a couple of nice relaxing days enjoying the excellent weather, eating out and resting up. Stacy has punched a 2 top quality afternoon naps, we think they are pretty important for her to catch up on the week of treatment action.
At noon today the T Ray, Junior Klein, the sweetest young lady ever to come out of Great Falls high Tawnya Gilchrist arrived in town. Tawnya is Stacy's great mate from back in the school days as is going to stay with us for a week and help ease the experience for us all.
We are excited to have Tawnya in town for the next week.
Last week was a tiring week. We ramped up the treatment intensity which was hard on Stacy's body due to the induced fever reaction that she experienced nightly. We are still waiting for some test results to come back however we are getting into the rhythm of the treatment and expect a similar week this week. We still feel like there is value in the treatment and are hopeful that after we have survived our time here that Stacy's body will be able to do some healing on its own free from toxins, pathogens and whatever else is disrupting her cells.
Thanks for all the love and care that has been sent our way.
Best wishes, Stacy and Mike
"Now get out there and make a difference"
Saturday, June 5, 2010
Treatment - Day 7
G'day friends, family, fans and followers.
It is Friday evening, the end of a week and the end of our 7th day of treatment at the SIMC in Reno. Overall we are going good, we've got one brave girl on our hands here people.
The first few days of our treatment focused on detoxification of Stacy's body, with extra attention on her liver. It was also a time of testing - blood, excretions and lung function.
Some results from this time are:
-Stacy's Liver is not able to keep up with its filtering job, so her red blood cells and her plasma have accumulated various imperfections.
-She has some small tube like bacteria in her blood called spirochetes. These are linked to a range of diseases - fire up google if you are keen.
-Her immune system is not functioning effectively. In some aspects it is not reacting to destroy antigens as it should, and in other situation it is hyper sensitive to some antigens and is over reacting and wearing itself out creating a response.
-There are still tests out for parasites, viruses and diseases.
-Her vital capacity (functional lung volume) is at the same level as it was a month ago.
The second phase of the treatment started yesterday and it is full on. At the end of each day of getting IV treatments, pro neural system and anti virus injections Stacy is given an injection of something that is designed to reset her immune system. It generates an intense fever that so far (2 nights) has only spiked as high as 102 degrees F, however we are only at Level 1 of 10.
It is a pretty rough ride. It takes about 45mins from the time of injection to start and then it starts quick. So far it has been characterised by 45mins of extreme cold feelings coupled with body stiffness and shakes that rattle her teeth. Then it fires up a fever for about 2 hours that leaves her exhausted and sore. In the morning she is very stiff and moving is harder and more painful than usual. It is called the Push and most of the patients here get it. Stacy will have it everyday while she is here. At this stage we expect she will have 25 pushes over the next 4 and a half weeks.
Now Stacy has never delivered a child however I get the sense it might sound something like the moans, groans and snapped instructions that we have heard over the last couple of evenings.
The Push coupled with a range of detoxification techniques are designed to kill bacteria and infections, and reset her immune system so that it can find and recognise the cause of her MND symptoms and correct the problem.
That is the plan at the moment and time will tell how effective it is for Stacy. Similar plans seem to be very effective for other people here.
Other stuff:
Check out this excellent effort regarding the Great Falls fund raiser over at Cindy's blog. http://cindycieluch.com/blog/?p=4891
Love your work Cindy, well done.
Some of Stacy's close mates are coming down one at a time to do some nursing. This is good, we've worked out that we can use one extra set of hands when it is one of Stacy's intimates who can get in on all the gritty aspects of our current situation. We are looking forward to visits from these girls.
As I said overall we are going good. We feel like we are doing something, and that something will be good for Stacy's body. Thanks for all the love.
Mike and Stacy
It is Friday evening, the end of a week and the end of our 7th day of treatment at the SIMC in Reno. Overall we are going good, we've got one brave girl on our hands here people.
The first few days of our treatment focused on detoxification of Stacy's body, with extra attention on her liver. It was also a time of testing - blood, excretions and lung function.
Some results from this time are:
-Stacy's Liver is not able to keep up with its filtering job, so her red blood cells and her plasma have accumulated various imperfections.
-She has some small tube like bacteria in her blood called spirochetes. These are linked to a range of diseases - fire up google if you are keen.
-Her immune system is not functioning effectively. In some aspects it is not reacting to destroy antigens as it should, and in other situation it is hyper sensitive to some antigens and is over reacting and wearing itself out creating a response.
-There are still tests out for parasites, viruses and diseases.
-Her vital capacity (functional lung volume) is at the same level as it was a month ago.
The second phase of the treatment started yesterday and it is full on. At the end of each day of getting IV treatments, pro neural system and anti virus injections Stacy is given an injection of something that is designed to reset her immune system. It generates an intense fever that so far (2 nights) has only spiked as high as 102 degrees F, however we are only at Level 1 of 10.
It is a pretty rough ride. It takes about 45mins from the time of injection to start and then it starts quick. So far it has been characterised by 45mins of extreme cold feelings coupled with body stiffness and shakes that rattle her teeth. Then it fires up a fever for about 2 hours that leaves her exhausted and sore. In the morning she is very stiff and moving is harder and more painful than usual. It is called the Push and most of the patients here get it. Stacy will have it everyday while she is here. At this stage we expect she will have 25 pushes over the next 4 and a half weeks.
Now Stacy has never delivered a child however I get the sense it might sound something like the moans, groans and snapped instructions that we have heard over the last couple of evenings.
The Push coupled with a range of detoxification techniques are designed to kill bacteria and infections, and reset her immune system so that it can find and recognise the cause of her MND symptoms and correct the problem.
That is the plan at the moment and time will tell how effective it is for Stacy. Similar plans seem to be very effective for other people here.
Other stuff:
Check out this excellent effort regarding the Great Falls fund raiser over at Cindy's blog. http://cindycieluch.com/blog/?p=4891
Love your work Cindy, well done.
Some of Stacy's close mates are coming down one at a time to do some nursing. This is good, we've worked out that we can use one extra set of hands when it is one of Stacy's intimates who can get in on all the gritty aspects of our current situation. We are looking forward to visits from these girls.
As I said overall we are going good. We feel like we are doing something, and that something will be good for Stacy's body. Thanks for all the love.
Mike and Stacy
Thursday, May 27, 2010
Speedy update.
Hello friends and family. Mike on the computer for an update.
Its a bit late at night for cheekiness and there are many topics to cover so I apologise in advance for the lack of creative prose. The plan is to dedicate full posts to the following, however in the interim here is what has been going on.
Great Falls was pretty good. It was a higher intensity week then we are used to back in Brisbane due to the large number of people that we wanted to spend time with during the week. Consequently it was both very enjoyable and quite tiring. I think by the time we left for Nevada we were more tired than when we arrived after our 26 hour trip from Australia.
Thanks very much for all the folks who traveled to come and see us. We enjoyed all the meals, rides, chats, babies and quiet times on the couch.
The fundraiser held on the 21st of May was a major event. I'm hesitant to define it by the number of people who came, amount of donated items, hours of preparation and funds raised as these amounts don't add up to the positive feeling and love that Stacy and I experienced from the event. It was a great success and we are very thankful to everyone who contributed.
Yesterday we flew down to Reno from Great Falls via Seattle. It was a pretty good trip, I think the last big trip was still in our memory so this little one didn't seem too bad. We have our rental car, we are in our hotel suite (both are good) and we are beginning to get our bearings in Reno. We arrived in at the hotel around 10:30pm and were up at 6am to make our first appointment at the clinic.
Today we spent our day at the Sierra Integrated Medical Center. Our description of the day would have been fairly different depending on when you asked us. It feels a little unfair and inaccurate to report my feelings about the day and the clinic now as during the day I felt both more positive and more negative at different times about the whole thing. You can consider that as you read the following.
I don't think we know much more about the big picture of our situation now than we did 24 hours ago. We have more information about some of the details however in terms of knowing how long we will be here, how likely we are to see a positive response for Stacy, what is going on inside Stacy's body we are still pretty much in the dark.
Today we drew a lot of blood and organised a really broad series of tests for that blood. Toxicity, chemical levels, lingering immunisation information, parasite existence, liver function, etc, etc. We did an evaluation of the energetic levels of Stacy's internal organs using key points (some word starting with 'M' should be here) on her hands and feet. We had a long consultation with the big wig Dr. Bruce Fong, D.O. H.M.D. Finally Stacy started some treatment which is standard for all patients at the center - an hour and half drip fluid that is designed to cleans the liver, and 2 injections that do some other stuff.
The plan at the center is to investigate what is happening in Stacy's body systems, to restore balance to her lymphatic, endocrine and immune systems and then see if in that process some negative factor that is damaging her body is removed. A bit of swinging in the dark really however with a condition in which the cause is unknown I guess there aren't many other options.
We are back in tomorrow for some more transfusions and injections.
Reno the town is full of restaurants, casinos and hotels, it is not overly pretty. It is however in a majestic setting. There are two very large snow covered peaks rearing up into the clouds close to town. Apparently the lifts only closed a couple of weeks ago and some people are still hiking up and skiing down, hectic.
We have some photos and plenty more stories to come. Sorry for the limited updates, Stace and I were saying tonight that just getting through the days are using up a lot of energy. We have had 3 pretty big days though - last day in GF, traveling, first day at the clinic. I hope that we will get into a routine soon. Liz does arrive in 2 days for the weekend.
Thanks very much for all the facebook, email, phone and in person love community. It has been great, stand by for a post about one such communication that blew us away - paper airplanes and everything (i'll let the photos do the talking on that one).
We love you.
Mike
Its a bit late at night for cheekiness and there are many topics to cover so I apologise in advance for the lack of creative prose. The plan is to dedicate full posts to the following, however in the interim here is what has been going on.
Great Falls was pretty good. It was a higher intensity week then we are used to back in Brisbane due to the large number of people that we wanted to spend time with during the week. Consequently it was both very enjoyable and quite tiring. I think by the time we left for Nevada we were more tired than when we arrived after our 26 hour trip from Australia.
Thanks very much for all the folks who traveled to come and see us. We enjoyed all the meals, rides, chats, babies and quiet times on the couch.
The fundraiser held on the 21st of May was a major event. I'm hesitant to define it by the number of people who came, amount of donated items, hours of preparation and funds raised as these amounts don't add up to the positive feeling and love that Stacy and I experienced from the event. It was a great success and we are very thankful to everyone who contributed.
Yesterday we flew down to Reno from Great Falls via Seattle. It was a pretty good trip, I think the last big trip was still in our memory so this little one didn't seem too bad. We have our rental car, we are in our hotel suite (both are good) and we are beginning to get our bearings in Reno. We arrived in at the hotel around 10:30pm and were up at 6am to make our first appointment at the clinic.
Today we spent our day at the Sierra Integrated Medical Center. Our description of the day would have been fairly different depending on when you asked us. It feels a little unfair and inaccurate to report my feelings about the day and the clinic now as during the day I felt both more positive and more negative at different times about the whole thing. You can consider that as you read the following.
I don't think we know much more about the big picture of our situation now than we did 24 hours ago. We have more information about some of the details however in terms of knowing how long we will be here, how likely we are to see a positive response for Stacy, what is going on inside Stacy's body we are still pretty much in the dark.
Today we drew a lot of blood and organised a really broad series of tests for that blood. Toxicity, chemical levels, lingering immunisation information, parasite existence, liver function, etc, etc. We did an evaluation of the energetic levels of Stacy's internal organs using key points (some word starting with 'M' should be here) on her hands and feet. We had a long consultation with the big wig Dr. Bruce Fong, D.O. H.M.D. Finally Stacy started some treatment which is standard for all patients at the center - an hour and half drip fluid that is designed to cleans the liver, and 2 injections that do some other stuff.
The plan at the center is to investigate what is happening in Stacy's body systems, to restore balance to her lymphatic, endocrine and immune systems and then see if in that process some negative factor that is damaging her body is removed. A bit of swinging in the dark really however with a condition in which the cause is unknown I guess there aren't many other options.
We are back in tomorrow for some more transfusions and injections.
Reno the town is full of restaurants, casinos and hotels, it is not overly pretty. It is however in a majestic setting. There are two very large snow covered peaks rearing up into the clouds close to town. Apparently the lifts only closed a couple of weeks ago and some people are still hiking up and skiing down, hectic.
We have some photos and plenty more stories to come. Sorry for the limited updates, Stace and I were saying tonight that just getting through the days are using up a lot of energy. We have had 3 pretty big days though - last day in GF, traveling, first day at the clinic. I hope that we will get into a routine soon. Liz does arrive in 2 days for the weekend.
Thanks very much for all the facebook, email, phone and in person love community. It has been great, stand by for a post about one such communication that blew us away - paper airplanes and everything (i'll let the photos do the talking on that one).
We love you.
Mike
Tuesday, May 18, 2010
We made it!
After 25 hours on the 'road' from Brisbane through LA, Salt Lake City, Great falls we made it to Chili's restaurant, and found ourselves set up with margaritas and meals the size of our heads. U.S.A, U.S.A, U.S.A.
Thanks very much to everyone who has sent us best wishes for our travels, it was nice to know so many people were thinking of and praying for us.
Stacy travelled really well given the challenges involved. She even had to be shipped off like cargo on a 2 wheel trolley/dolly type number. If we had the face mask it would have been a sweet Hanibal Lecter moment.
We slept for almost 14 hours last night with a 4am wide awake hour in the middle. Today Stacy is getting around pretty well and we are happy with her energy levels. It is beautiful here in the Great Falls early summer. We are looking forward to quite a few long and lazy evenings on the freshly renovated back deck.
Elk burgers and Ceasars for dinner tonight - yeah.
Lots of love to our extended family.
Mike
Thanks very much to everyone who has sent us best wishes for our travels, it was nice to know so many people were thinking of and praying for us.
Stacy travelled really well given the challenges involved. She even had to be shipped off like cargo on a 2 wheel trolley/dolly type number. If we had the face mask it would have been a sweet Hanibal Lecter moment.
We slept for almost 14 hours last night with a 4am wide awake hour in the middle. Today Stacy is getting around pretty well and we are happy with her energy levels. It is beautiful here in the Great Falls early summer. We are looking forward to quite a few long and lazy evenings on the freshly renovated back deck.
Elk burgers and Ceasars for dinner tonight - yeah.
Lots of love to our extended family.
Mike
Friday, May 14, 2010
What is going on.
G'day all, Mike here guest posting.
I'm here with a general update and Stacy will be back with more from the tear jerking and inspiration collection soon. She gets all the good jobs.
Righto so the matriarch, the big momma, the lady in the red hair, Debi Frey has been in town for the last 4 weeks. It has been very good to have Deb on board helping out around the house and I'd say we are all in fairly good emotional condition. That might be speaking a bit out of line, however I'm going to keep a positive frame of mind on this one.
We are heading over to the states on the 16th of May (two days time) and we think the trip will be both very tiring and also fairly enjoyable. It will be a mixed trip with a visit to Montana to spend some time with family and friends, quickly followed by some time in Reno, Nevada at an alternative medicine clinic.
Many of the doctors and health professionals are quite concerned about us making this trip to the states on the grounds that Stacy's condition is progressing and she is moving into a stage where she will require regular assessment of her breathing and swallowing function. The reality is that if this trip was purely of a social nature we would probably have decided against it as it does pose a risk to Stacy's overall health.
The situation is though that we feel the need to do some further investigation into the treatment of Stacy's condition. As such we are taking the risk of accelerating the progress of Stacy's decline against the potential good news we may find at this clinic in Nevada. Details about the clinic can be found at http://www.sierraintegrative.com/
Stacy's incredible ability to synthesise frightening new information about her own mortality into her world view in order to make major life decisions is astounding. It took her around 26 hours to incorporate the information that a trip to the States for more than a month could be very dangerous to her health into her understanding of the world. She then considered the situation she found herself in, balanced the risks and made her decision. The brilliance of this is that once the decision was made we were back to enjoying our evening and living our life.
Sometimes you make a decision and then continue to remake the same decision in the following days and weeks. This keeps you in a state of flux that inhibits your ability to live your life and enjoy the world. Stacy and I have learned how to make life changing decisions and then leave those decisions made so we can go out and enjoy an iced coffee in all its creamy deliciousness.
"Mike I've worked it out, I can either stay here and die, or I can go over there and try.
Do you know what movies are on tonight?"
So we are coming over to the states and we'll see what comes of it. One thing that we know will come of our trip to the states is a Montana sized fund-raiser: http://stacyneildbenefit.eikonproductions.com/
Team Stacy North America branch have been working overtime and it seems to us that a huge event is the direct result. We aren't really sure what will be involved with this benefit night, however we do know that Tawnya did her TV interview today, and that through the class of 2000 Great Falls High 10 year reunion facebook page the news of the benefit has gone viral - go bison.
Ok, enough out of me. I'm sure Stacy will be back here soon to share some insight about the beauty of life or something. She's sitting next to me reading some Steven King short stories so I'll be interested to see how she works that in with her blog theme of positive thinking and floating in oceans of faith while dreaming about running.
Keep the email love coming, we are both regularly buoyed by the beauty and eloquence of our friends and family.
Love
Mike
I'm here with a general update and Stacy will be back with more from the tear jerking and inspiration collection soon. She gets all the good jobs.
Righto so the matriarch, the big momma, the lady in the red hair, Debi Frey has been in town for the last 4 weeks. It has been very good to have Deb on board helping out around the house and I'd say we are all in fairly good emotional condition. That might be speaking a bit out of line, however I'm going to keep a positive frame of mind on this one.
We are heading over to the states on the 16th of May (two days time) and we think the trip will be both very tiring and also fairly enjoyable. It will be a mixed trip with a visit to Montana to spend some time with family and friends, quickly followed by some time in Reno, Nevada at an alternative medicine clinic.
Many of the doctors and health professionals are quite concerned about us making this trip to the states on the grounds that Stacy's condition is progressing and she is moving into a stage where she will require regular assessment of her breathing and swallowing function. The reality is that if this trip was purely of a social nature we would probably have decided against it as it does pose a risk to Stacy's overall health.
The situation is though that we feel the need to do some further investigation into the treatment of Stacy's condition. As such we are taking the risk of accelerating the progress of Stacy's decline against the potential good news we may find at this clinic in Nevada. Details about the clinic can be found at http://www.sierraintegrative.com/
Stacy's incredible ability to synthesise frightening new information about her own mortality into her world view in order to make major life decisions is astounding. It took her around 26 hours to incorporate the information that a trip to the States for more than a month could be very dangerous to her health into her understanding of the world. She then considered the situation she found herself in, balanced the risks and made her decision. The brilliance of this is that once the decision was made we were back to enjoying our evening and living our life.
Sometimes you make a decision and then continue to remake the same decision in the following days and weeks. This keeps you in a state of flux that inhibits your ability to live your life and enjoy the world. Stacy and I have learned how to make life changing decisions and then leave those decisions made so we can go out and enjoy an iced coffee in all its creamy deliciousness.
"Mike I've worked it out, I can either stay here and die, or I can go over there and try.
Do you know what movies are on tonight?"
So we are coming over to the states and we'll see what comes of it. One thing that we know will come of our trip to the states is a Montana sized fund-raiser: http://stacyneildbenefit.eikonproductions.com/
Team Stacy North America branch have been working overtime and it seems to us that a huge event is the direct result. We aren't really sure what will be involved with this benefit night, however we do know that Tawnya did her TV interview today, and that through the class of 2000 Great Falls High 10 year reunion facebook page the news of the benefit has gone viral - go bison.
Ok, enough out of me. I'm sure Stacy will be back here soon to share some insight about the beauty of life or something. She's sitting next to me reading some Steven King short stories so I'll be interested to see how she works that in with her blog theme of positive thinking and floating in oceans of faith while dreaming about running.
Keep the email love coming, we are both regularly buoyed by the beauty and eloquence of our friends and family.
Love
Mike
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